The MAGICal details

Henry, Auntie Erin, and me, in Chicago
for MAGIC convention 2006.
(Henry was 2 years old
at this time, and pre-treatment)

Here's a bit more information about the educational sessions I'd like to attend about Henry's disorder: (from the MAGIC convention program)

Treating IGFD is not always straightforward, there are many different options. Dr. Midyett will talk about the various options available and why different treatment plans work better for some children. Developmental delays can be very common in children with growth disorders. For the next segment, come learn about the common delays for children with these disorders and how we as parents can best help them. After lunch, Dr. Miller will give us straightforward information to help guide us through the transitional time of growth. Puberty can be tough enough for the average preteen or teenager, but it can be a very different challenge for children with growth disorders. It comes with decisions like whether to delay it, how to delay it and for how long to delay it. IGFD is new to most of us, including doctors. It is a learning process that we are all going through together. Dr. Miller will be talking about what steps should be taken to come to an accurate diagnosis, causes of IGFD and the future of IGFD. To end the day, come talk to other parents going through the same struggles and challenges. This journey is confusing and can be quite lonely with no one to talk to. Share your stories and learn from each other.

More about MAGIC and Henry

Thought I'd share a little more about the convention that Henry and I would like to attend in July in Chicago. It's put on by a group called The MAGIC Foundation, which stands for Major Aspects of Growth in Children. You can read more about this group here.

You can also read more about Henry's specific disorder on the MAGIC web site. The best part about this group is that it is run by parents and family of affected children. You can call the MAGIC help line or email the office, and another parent whose child has problems similar to yours will call and help answer questions. It's such a comfort.

The convention happens every year, and the children can get together and see that they are not the only ones who have a rare disorder, and the parents can network and get answers from top doctors in the field of their children's diseases.

If you would like to help Henry get to MAGIC this summer, I've added a donate button (over at the right) that will allow you to make a donation to Henry's expenses. Whatever money is not used to pay for the convention will be given to MAGIC as a donation for the great help they've given our family.