The MAGICal details

Henry, Auntie Erin, and me, in Chicago
for MAGIC convention 2006.
(Henry was 2 years old
at this time, and pre-treatment)

Here's a bit more information about the educational sessions I'd like to attend about Henry's disorder: (from the MAGIC convention program)

Treating IGFD is not always straightforward, there are many different options. Dr. Midyett will talk about the various options available and why different treatment plans work better for some children. Developmental delays can be very common in children with growth disorders. For the next segment, come learn about the common delays for children with these disorders and how we as parents can best help them. After lunch, Dr. Miller will give us straightforward information to help guide us through the transitional time of growth. Puberty can be tough enough for the average preteen or teenager, but it can be a very different challenge for children with growth disorders. It comes with decisions like whether to delay it, how to delay it and for how long to delay it. IGFD is new to most of us, including doctors. It is a learning process that we are all going through together. Dr. Miller will be talking about what steps should be taken to come to an accurate diagnosis, causes of IGFD and the future of IGFD. To end the day, come talk to other parents going through the same struggles and challenges. This journey is confusing and can be quite lonely with no one to talk to. Share your stories and learn from each other.