More about MAGIC and Henry

Thought I'd share a little more about the convention that Henry and I would like to attend in July in Chicago. It's put on by a group called The MAGIC Foundation, which stands for Major Aspects of Growth in Children. You can read more about this group here.

You can also read more about Henry's specific disorder on the MAGIC web site. The best part about this group is that it is run by parents and family of affected children. You can call the MAGIC help line or email the office, and another parent whose child has problems similar to yours will call and help answer questions. It's such a comfort.

The convention happens every year, and the children can get together and see that they are not the only ones who have a rare disorder, and the parents can network and get answers from top doctors in the field of their children's diseases.

If you would like to help Henry get to MAGIC this summer, I've added a donate button (over at the right) that will allow you to make a donation to Henry's expenses. Whatever money is not used to pay for the convention will be given to MAGIC as a donation for the great help they've given our family.